Awareness Weekend
On March 28 and 29, the Caring for Carcinoid Foundation held its first "Awareness Weekend" in Los Angeles, CA.
The weekend began with the Great Race of Agoura Hills where over 40 patients, friends and family members ran to a cure. I ran the 10k and learned that the race was appropriately named the Great Race of AGOURA HILLS! When they said Hills they were not joking around.
On March 28 and 29, the Caring for Carcinoid Foundation held its first "Awareness Weekend" in Los Angeles, CA.The weekend began with the Great Race of Agoura Hills where over 40 patients, friends and family members ran to a cure. I ran the 10k and learned that the race was appropriately named the Great Race of AGOURA HILLS! When they said Hills they were not joking around.
Afterwards, we celebrated at the Post Race Party where Fred Herlitz of the MTH Foundation presented CFCF with a check for $50,000 for the Mary Terese Hartzheim Award for Neuroendocrine Tumor Research. Over $21,000 was raised for research; click here to see Team CFCF in Action and here to read about Shari and Rachel House who traveled from Portland, OR to participate!
Next came the celebration in the Foundation Room at the House of Blues. Entertainment was provided by sleight of hand, John Carney and indie rock band, The States. It was terrific to be able to meet so many patients and their families and relax in a fun, festive environment!
The weekend concluded with CFCF's Patient Education Day at Cedars-Sinai Medical Center. We thank Dr. Wolin and Cedars-Sinai for their hospitality. Leading experts including: Rachel Beller, RD, Jean Botha, MD, George Fisher, MD, PhD, Greg Fitzke, MD, Nirmala Hidalgo, MD, Pamela Kunz, MD, Matthew Meyerson, MD, PhD, Jodi Newson, MS, RD, Joseph Pisegna, MD, Edward Wolin, MD, and Michael Zaruba, MD presented the latest advances and answered patient's questions in a panel moderated by Nancy Lindholm O'Hagan, CFCF's Founder and President.
Next came the celebration in the Foundation Room at the House of Blues. Entertainment was provided by sleight of hand, John Carney and indie rock band, The States. It was terrific to be able to meet so many patients and their families and relax in a fun, festive environment!
The weekend concluded with CFCF's Patient Education Day at Cedars-Sinai Medical Center. We thank Dr. Wolin and Cedars-Sinai for their hospitality. Leading experts including: Rachel Beller, RD, Jean Botha, MD, George Fisher, MD, PhD, Greg Fitzke, MD, Nirmala Hidalgo, MD, Pamela Kunz, MD, Matthew Meyerson, MD, PhD, Jodi Newson, MS, RD, Joseph Pisegna, MD, Edward Wolin, MD, and Michael Zaruba, MD presented the latest advances and answered patient's questions in a panel moderated by Nancy Lindholm O'Hagan, CFCF's Founder and President.
CFCF Director Carrie Host presented her experience as a metastatic carcinoid patient and gave a sneak preview of her book, Between Me and the River. I have been lucky enough to receive an advance copy of Carrie's book and read it cover to cover. I highly recommend it not only for patients but for their friends, families and loved ones as well. It is a story of love and triumph that should not be missed.
We are grateful to Nickolette Way, Jan Naritomi-Hart, Hana Hraebec-Snyder and the many experts, volunteers and sponsors that made this weekend possible. If you are interested in receiving a copy of the program and DVD from the weekend please email Ben. To see pictures of the weekend please visit the Great Race of Agoura Hills photo gallery.
We are hard at work planning our second patient conference for 2009. We hope you will all join us September 12th and 13th in Boston, MA. The weekend will conclude with the DFCI Jimmy Fund Walk on Sunday September 13th where all proceeds will go towards Dr. Meyerson's large-scale genome study of carcinoid. To sign-up please visit Team CFCF's page and be sure to join Team Caring for Carcinoid Foundation.
We are grateful to Nickolette Way, Jan Naritomi-Hart, Hana Hraebec-Snyder and the many experts, volunteers and sponsors that made this weekend possible. If you are interested in receiving a copy of the program and DVD from the weekend please email Ben. To see pictures of the weekend please visit the Great Race of Agoura Hills photo gallery.
We are hard at work planning our second patient conference for 2009. We hope you will all join us September 12th and 13th in Boston, MA. The weekend will conclude with the DFCI Jimmy Fund Walk on Sunday September 13th where all proceeds will go towards Dr. Meyerson's large-scale genome study of carcinoid. To sign-up please visit Team CFCF's page and be sure to join Team Caring for Carcinoid Foundation.
Please write to me and let me know what topics you would like covered in Boston - lauren.erb@caringforcarcinoid.org
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